About Us
About the Creutzfeldt-Jakob Disease Foundation 

Who We Are
The Creutzfeldt-Jakob Disease Foundation consists of members who are concerned about the complexity of issues surrounding this fatal brain disease. Our mission is to support families and loved ones touched by CJD.

We carry out this mission by means of:

  • Publication of CJD Information pamphlet and trifolds.
  • Political and public policy advocacy.
  • An Annual Family Conference.
  • Family Workshops held around the country.
  • Collaboration with the National Prion Disease Pathology Surveillance Center and the Centers for Disease Control and Prevention.
  • Monitoring and communicating by newsletter all of the current research and Foundation activities.
  • Collaboration with international support groups from 10 other countries.

We offer support, information and practical advice. We do not offer opinions or medical advice. 

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